Category: Uncategorized

Enabling the Effective Sharing of Clinical Data

This blog post was written for DNAdigest by Mathias Astell, Marketing Manager for Nature Publishing Group & Iain Hrynaszkiewicz Head of Data and HSS Publishing for Nature Publishing Group The benefits of sharing data generated by...

Patient consent is not the problem

 – but modernising consent is part of the solution!   It is a long way for a researcher to find and access data from a restricted access repository to access e.g. Health records or...

The Patient Group Handbook – now in print!

Great news for rare disease patient groups announced by Nick Sireau and Findacure:  Dear friends, We’re very pleased to say that our latest book – The Patient Group Handbook: A Practical Guide for Research and...

The Open Science Prize

The Wellcome Trust have teamed up with the US National Institute of Health and the Howard Hughes Medical Institute to launch an new prize for the scientific community? It’s aim? To help researchers realise the...