How do you imagine the future of data sharing in healthcare or research? This post was written by Clara Podmore as one of the honorable mentions for our data sharing essay competitions. Since the...
The Makings of a Meta-Analysis or: How I Wasted Dozens of Hours Obtaining Publicly Available Data This post was written by Andrew Magee as one of the honorable mentions for our data sharing essay...
The recent paper, Big Desire to Share Big Health Data: A Shift in Consumer Attitudes toward Personal Health Information, exploring the desire (or lack of desire) to share big health data provides a lot of...
We love talking to you all. So much so we’ve been talking to the different scientific communities and as such Check us out doing AMA’s on reddit: Genetics: http://www.reddit.com/r/genetics/ Bioinformatics: http://www.reddit.com/r/bioinformatics/ Genomics: http://www.reddit.com/r/genomics/ Science:...
Incredibly, over £8 million has been raised for Cancer Research in just 6 days after the ‘no-make-up-selfie’ went viral. It is an amazing example of the power of sharing and highlights how much of a...
Almost two decades ago The Bermuda Principles were set up to reconcile differences between public and private sector interests in relation to human genome sequencing and genetics. The idea of a commons obeying these...
You may already be familiar with Tempest Van Schaik through our crowdfunding campaign but finally we are properly introducing her! Tempest is just completing her PhD in bioengineering at Imperial College London and has joined the DNAdigest team to research...
The graphic below, ‘The Server Room’ visualises the processes and challenges associated with sharing our data. It’s been a bit of a wait for the final instalment of output from the Genetics Clinic of...
Presentation At the Eagle Genomics Symposium Fiona Nielsen CEO and founder of DNAdigest presented a discussion of the trade-off between privacy and open access and how hard-to-access data is hindering progress in genetics research....
The mission of turning data into knowledge is a key aim of DNA Digest. And the key point of this knowledge is to help patients. This sentiment is echoed by healthcare cooperatives such as...
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£ 24.99deannachurch We’ve made huge advances in sequencing and assembly but to assert you can get a human genome of the same quality as the reference in a day is false. buff.ly/2Lf8gtn — Deanna Church (@deannachurch) December 13, 2018
We think open science can revolutionize medicine: open standards (@GA4GH, @cwl, @GenomeInABottle), Free and Open Source Software implementations (@arvados), public domain data and cells under open consent (@PGorg) can be building blocks for everyone.
ReechaSofat this one is for you @NathanCLea and @s_j_newhouse thank you @PHGFoundation! — Reecha Sofat (@ReechaSofat) December 9, 2018
cm23lee The three pillars that every scientist should stand on, from Pres Jodi Nunnari. It includes advocacy and public outreach...yeah! #ASCBEMBO18 buff.ly/2QpIQ25 — Connie M. Lee (@cm23lee) December 9, 2018
matthewherper Some personal news. After 18.5 amazing years at Forbes, I am leaving. In January, I’ll start as Senior Writer, Medicine at @statnews. buff.ly/2L2QSrq — Matthew Herper (@matthewherper) December 7, 2018
manoliskellis Today was my last lecture for @MIT #ComputationalBiology: #Genomes, #Networks, #Evolution, #Health. I recorded each and immediately posted online here: buff.ly/2Qi3mBw Please do share, and let me know which topics need more explanations, clarifications, a…
Thank you to outgoing GA4GH leadership members and welcome incoming Vice Chair and Work Stream Leads! @HeidiRehm, @JPHubaux, @HarindraArachi, @PaulFlicek, @nyronen, @mbaudis. Read more: mailchi.mp/ga4gh.org/2019… pic.twitter.com/HJJIqeyYja
It's time for the Academy to take a stand for publicly funded research. Keep your copyright. 0 embargo period. Share the research data with the article. Add an @creativecommons license to enable text & data mining. #OA #OER #OpenData latimes.com/business/hiltz…
