Presentation At the Eagle Genomics Symposium Fiona Nielsen CEO and founder of DNAdigest presented a discussion of the trade-off between privacy and open access and how hard-to-access data is hindering progress in genetics research....
The mission of turning data into knowledge is a key aim of DNA Digest. And the key point of this knowledge is to help patients. This sentiment is echoed by healthcare cooperatives such as...
The Research Data Alliance (RDA) 3rd plenary conference is being held next week and of course CEO Fiona Nielsen will be in attendance. The event is focussing on data policy and has distinguished speakers from across the...
Next Thursday, the 27th March, DNAdigest CEO, Fiona Nielsen, has been invited to speak at The 4th Annual Eagle Symposium. The symposium is an all day event presenting challenges and solutions to those in...
A huge congratulations to the winner of the DNAdigest Write for Data Sharing Essay Competition and the £200 prize: Eilish Wells wrote on the current state of data sharing and how we can encourage best...
The Patient was another one of the key themes explored by the Genetics Clinic of the Future. The session was lead by Cor Oosterwijk, Ralf Sudbrak, Francesco Lescai and Maud Radstake. All have distinguished careers in healthcare policy, bioinformatics...
Last week DNA Digest took a trip out of the Wayra hub to hear an expert panel discuss the role and future of patenting in biomedical research. The Talkscience: Patently Obvious? talk and discussion...
On Wednesday 5th our DNA Digest CEO, Fiona Nielsen, attended a special event promoting the benefits to women of careers in Science, Technology, Engineering, Maths and Medicine. The reception, hosted by Deputy Prime Minister, Rt Hon...
Congratulations to Mahsa Shabani for her winning tweet regarding the ethical challenges for genomic data sharing. See all our entries in the DNAdigest twitter competition Storify. Big thanks to everyone who participated and shared...
We are excited to announce that we have now launched our Thunderclap. We would love for you to lend us your social media voice to help spread the word about the importance of data sharing in...
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£ 24.99@camraredisease #CRDN2017 23 Oct @RobinsonCollege 220+ delegates: meet pharma, patient grps, academia, health pros universe.com/crdnsummit2017
How can biobanks @BBMRIERIC and data generated from their samples be made to work together @ELIXIREurope? Read: ebi.ac.uk/about/news/fea…
Have you heard about our new research project on the emotional impact of living with a rare/#undiagnosed condition? raredisease.org.uk/news-event… pic.twitter.com/QRM3v0FP4a
Rare disease research can help us understand much more about common conditions and vice versa. #FirstinHuman
A rare disease is one that affects fewer than 200K ppl. There are 5,000+ rare diseases affecting 25-30M ppl in the US #FirstinHuman
Featured now: FAIRsharing, a resource on data & metadata standards. Vote it up @ Labworm.com! Top 5 voted announced next week. pic.twitter.com/6bquoQNwRT
Results of our #HealthDataBasics survey are in! See how perspectives on #data compare btwn #patients & #caregivers: healthdatabasics.org/updates/ pic.twitter.com/RHum7m9GSO
Truly urgent genetics convos are in #genomicmedicine - #GA4GH & @GenomicsEngland wrkng on it, says @vivienneparry nature.com/news/commit-to…
