How do you imagine the future of data sharing in healthcare or research? This post was written by Clara Podmore as one of the honorable mentions for our data sharing essay competitions. Since the...
The Makings of a Meta-Analysis or: How I Wasted Dozens of Hours Obtaining Publicly Available Data This post was written by Andrew Magee as one of the honorable mentions for our data sharing essay...
The recent paper, Big Desire to Share Big Health Data: A Shift in Consumer Attitudes toward Personal Health Information, exploring the desire (or lack of desire) to share big health data provides a lot of...
We love talking to you all. So much so we’ve been talking to the different scientific communities and as such Check us out doing AMA’s on reddit: Genetics: http://www.reddit.com/r/genetics/ Bioinformatics: http://www.reddit.com/r/bioinformatics/ Genomics: http://www.reddit.com/r/genomics/ Science:...
Incredibly, over £8 million has been raised for Cancer Research in just 6 days after the ‘no-make-up-selfie’ went viral. It is an amazing example of the power of sharing and highlights how much of a...
Almost two decades ago The Bermuda Principles were set up to reconcile differences between public and private sector interests in relation to human genome sequencing and genetics. The idea of a commons obeying these...
You may already be familiar with Tempest Van Schaik through our crowdfunding campaign but finally we are properly introducing her! Tempest is just completing her PhD in bioengineering at Imperial College London and has joined the DNAdigest team to research...
The graphic below, ‘The Server Room’ visualises the processes and challenges associated with sharing our data. It’s been a bit of a wait for the final instalment of output from the Genetics Clinic of...
Presentation At the Eagle Genomics Symposium Fiona Nielsen CEO and founder of DNAdigest presented a discussion of the trade-off between privacy and open access and how hard-to-access data is hindering progress in genetics research....
The mission of turning data into knowledge is a key aim of DNA Digest. And the key point of this knowledge is to help patients. This sentiment is echoed by healthcare cooperatives such as...
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£ 24.99KMS_Meltzy I’d be cool with just some form of standardized metadata. Don’t really care which standard; just tell me what it is — Karyn Meltz (@KMS_Meltzy) April 17, 2019
KMS_Meltzy So, uh, searching data from buff.ly/2vdsIn0 using different gene synonyms returns vastly different results: Search for CD274=190 studies Search for PD-L1=1147 studies#bioinformatics — Karyn Meltz (@KMS_Meltzy) April 17, 2019
So, uh, searching data from clinicaltrials.gov using different gene synonyms returns vastly different results: Search for CD274=190 studies Search for PD-L1=1147 studies #bioinformatics
A familiar sight, here from frontrunner @DanaFarber. You get quality clinical dara, especially oncology, via manual curation (can be AI assisted ofc). Still remember @flatironhealth explaining they got to a 10B valuation by 'doing the hard work no one else wanted to do' #BioIT19 pic.twitter.com/bzVOb0qIh5
Here's @VdaGeraldine and @broadinstitute colleagues presenting their #BioIT19 hackathon efforts to generate synthetic biomedical data using the very cool #Terra virtual research environment. Read all about it at github.com/NCBI-Hackathon… pic.twitter.com/YNpF33Tifq
keesvanbochove Presentations of the #BioIT19 hackathon are on now! Nice to see the progress of the 8 groups in making data #FAIR. Work products are on github: buff.ly/2VQVzsX buff.ly/2VQeJiC — Kees van Bochove (@keesvanbochove) April 16, 2019
John @wilbanks: we need #OpenScience to address the danger that science becomes just another sector thats consumed by a #Stack. We need to leverage the power of communities to avoid this (Eleanor Ostrom). Build many engaged high-trust communities, instead of 1 big system #BioIT19 pic.twitter.com/fuUXJs5aR8
The ELIXIR Recommended Interoperability Resources facilitate #FAIR-supporting activities in life science research: bit.ly/2KSjAPg Here's how they map to the ELIXIR Interoperability service framework! #FAIRdata #bioinformatics pic.twitter.com/bUwJRSIiUL
