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DNAdigest interviews

DNAdigest interviews MIABIS Connect

Today we interview the team of MIABIS Connect – a federation software platform designed to connect biobanks. MIABIS stands for Minimum Information About BIobank data Sharing. 1.  What exactly is MIABIS Connect?  MIABIS Connect...

DNAdigest interviews

DNAdigest interviews DNA.Land

Interview with Dr Yaniv Erlich, Assistant Professor of Computer Science at Columbia University and Core Member of New York Genome Center about one of his projects; DNA.Land 1) What is DNA.Land? DNA.Land is a...

Patient consent is not the problem

 – but modernising consent is part of the solution!   It is a long way for a researcher to find and access data from a restricted access repository to access e.g. Health records or...

Genomic data sharing: How much oversight is necessary

This is a guest blog post by Mahsa Shabani, LL.B., LL.M., MA., a PhD Candidate at the Center for Biomedical Ethics and Law, University of Leuven. Her research interests revolve around ethical, legal and social aspects of genetics...

What Open Access is and what it is not

This is a guest post by Nancy Pontika, Open Access Aggregation Officer at the COnnecting REpositories (CORE) project, Knowledge Media Institute, Open University. What is Open Access and why is it useful? The scholarly...