Mug

DNAdigest.org

@DNADigest

@camraredisease #CRDN2017 23 Oct @RobinsonCollege 220+ delegates: meet pharma, patient grps, academia, health pros universe.com/crdnsummit2017

11:44 am · August 15, 2017

Tommi Nyrönen

@nyronen

How can biobanks @BBMRIERIC and data generated from their samples be made to work together @ELIXIREurope? Read: ebi.ac.uk/about/news/fea…

10:57 am · August 12, 2017 ·

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Rare Disease UK

@rarediseaseuk

Have you heard about our new research project on the emotional impact of living with a rare/#undiagnosed condition? raredisease.org.uk/news-event… pic.twitter.com/QRM3v0FP4a

3:07 pm · August 11, 2017 ·

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NIH

@NIH

Rare disease research can help us understand much more about common conditions and vice versa. #FirstinHuman

12:00 pm · August 11, 2017 ·

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NIH

@NIH

A rare disease is one that affects fewer than 200K ppl. There are 5,000+ rare diseases affecting 25-30M ppl in the US #FirstinHuman

10:57 am · August 11, 2017 ·

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LabWorm

@TheLabWorm

Featured now: FAIRsharing, a resource on data & metadata standards. Vote it up @ Labworm.com! Top 5 voted announced next week. pic.twitter.com/6bquoQNwRT

11:06 pm · August 10, 2017 ·

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FasterCures

@fastercures

Results of our #HealthDataBasics survey are in! See how perspectives on #data compare btwn #patients & #caregivers: healthdatabasics.org/updates/ pic.twitter.com/RHum7m9GSO

12:01 pm · August 10, 2017 ·

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GA4GH

@GA4GH

Truly urgent genetics convos are in #genomicmedicine - #GA4GH & @GenomicsEngland wrkng on it, says @vivienneparry nature.com/news/commit-to…

10:57 am · August 10, 2017 ·

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