Tagged: patients

DNAdigest interviews

DNAdigest interviews Patients Know Best

Dr Mohammad Al-Ubaydli is the founder and CEO of Patients Know Best, an organisation that moves the data custodianship into the hands of the patients, to facilitate data sharing and data access between the...

The Patient Charter

Genome sequencing: What do patients think?

Guest post by Alice Hazelton from the Genetic Alliance UK Genomic information has the potential to transform healthcare. Researchers are continually learning more about the genome and the genetic basis of disease and as the...

data sharing

Code for Genomic and Health-Related Data Sharing

The sharing of scientific, genomic and health-related data for the sake of research is of a fundamental importance in order to provide continuous progress in our understanding of human health and wellbeing. While collaboration...

symposium

DNA Digest Symposium 2014

DNA Digest’s Symposium/Workshop “Open Science in human genomics research – challenges and inspirations” You can sign up for the event here: http://dnadigestsym2014.eventbrite.co.uk Today, open sharing and easy access to DNA sequencing data from clinical samples...

mainentrance_small

The Main Entrance: The Patient

  What is the role of the patient in the Genetics Clinic of the Future? Will the patient be simply a recipient of a diagnosis or is the patient an active participant in the...